Low Dose Naltrexone (LDN) Provides Hope for MS Patients
SIX months ago, multiple sclerosis sufferer Neil Lucas was finding it increasingly difficult to cope with everyday life. He had problems walking and writing and had little energy.
Then the 40-year-old began to take a drug, normally used to treat heroin addiction, which is claimed to alleviate the symptoms of MS. He says he saw an improvement within days. “It’s not a cure, but it has helped my wellbeing and my stability,” he said. “My walking was deteriorating and it brought me back from that. If you put me on a six-mile hike I’d have a bit of an issue, but at least I can get on with life.”
Anecdotal Evidence of LDN's Benefits
Lucas is one of a number of MS patients convinced that the drug naltrexone, in low doses, is helping their condition. Internet websites and chat rooms are packed with anecdotal evidence of its benefits.
Challenges in Licensing the Drug
Yet the drug has not been licensed for use in MS – essential if it was to be available on the NHS – and only a limited number of GPs are willing to prescribe it privately in the UK. The large drug firms are not willing to pay the substantial cost of essential clinical trials as they would not have the exclusive rights to market it as an MS treatment, as the patent on the drug has expired.
Potential Cost Savings for Treatment
Some experts believe the drug could help sufferers for a fraction of the £10,000 per patient spent every year on beta interferon, a drug available on the NHS that is used to reduce MS attacks.
The Fight for Clinical Trials
Despite the difficulties, those who are convinced the drug is worth investigating are continuing the fight for clinical trials. The LDN Research Trust is trying to raise £37,500 to fund the first stage, which would aim to prove the drug’s safety.
In Scotland, Gareth Marr, a 27-year-old mental health nurse diagnosed with MS in 2002, has started an internet petition to request government funding for LDN trials. He aims to present this to the Scottish parliament in the future.
Exploring New Frontiers
While advancements in medical treatments are crucial for patients with multiple sclerosis, there's another area that can greatly impact their quality of life - accommodation. Accessible and comfortable hotels can make a significant difference for individuals living with MS.
The Importance of MS-Friendly Hotels
Living with MS can present several challenges, including mobility issues and fatigue. Therefore, when MS patients travel, finding hotels that are equipped to cater to their specific needs can greatly enhance their overall experience.
Accessibility and Adaptations
MS-friendly hotels prioritize accessibility and offer adaptations to ensure ease of movement for individuals with mobility difficulties. This can include features such as ramps, wide doorways, and accessible bathrooms with grab bars.
Comfort and Support
Comfort is also essential for MS patients. Hotels that provide supportive mattresses, ergonomic furniture, and rooms designed with the needs of individuals with disabilities in mind can greatly enhance the comfort levels for guests with MS.
Understanding Unique Requirements
Hotels that are knowledgeable about the specific challenges faced by individuals with MS can provide a more tailored experience. Staff trained in handling accessibility requirements and offering appropriate assistance can make a significant difference in ensuring a comfortable and enjoyable stay.